Kaylee squealed with barely contained delight as images of her brother, Adam, flashed on the TV screen. As the grinning 9-year-old watched her handiwork — she narrated and helped pick the photos and choose the music, "Firework" by Katy Perry — she sat on the sofa with her arm slung around Adam with easy, loving familiarity. Developmentally, however, he's around 3 months, his mother said. His head wobbles a little, he's only recently learned to smile and for 20 hours out of every 24 he's tethered to a feeding tube that snakes out of his belly to an IV pole holding a bag of prescription formula. The video had a dual purpose: To promote awareness of "tubies," children dependent on feeding tubes, and for the family to celebrate how far they've come in the year since Adam received a trio of devastating, but inconclusive, diagnoses at 3 months old. Pegged as having microcephaly, a brain disorder, as well as neuropathic dysmotility and visceral hyperalgesia, stomach issues that prevent him from retaining food and absorbing nutrition, Adam's prognosis is unknown. There's no name for it or recognizable syndrome. He does have an underlying central nervous system problem," said Sean Sullivan, a pediatric gastroenterologist at Naval Medical Center Portsmouth.
Latest York County & Poquoson
All of these above questions make you crazy whenever coming up with them. We know your feelings because we used to be in this weird situation when searching for these items. Before deciding to buy any stuffs, make sure you research and read carefully the buying guide somewhere else from trusted sources. Good news, we use Big Data and AI to solve the issue. We use our own invented, special algorithms to generate lists of the best brands and give them our own Scores to rank from 1st to 10th. You could see the Top 10 The Tubie Guard of above. The lists of best items are updated regularly, so you can be sure that the information provided is up-to-date. You may read more about us to know what we have achieved so far. Com, Inc. Or Its Affiliates.
Share this:. TubieGuard, Plastic device that prevents disconnection of the Gift The TubieGuard is a case that protects various feeding tube connections from accidentally disconnecting or being tampered with. We are confident that you will
As time has gone by, the medical field has advanced and accessories for individuals who have feeding tubes have progress in big ways!! These new products have gotten more user-friendly are are great for any age. For the young children who have feeding tubes, companies have created products like backpacks, G-tube covers and pads, and creative ways to ensure that having a feeding tube does not limit any of their imaginations and possibilities! Glow Green: One of the greatest inventions in my opinion , is the ability to have something glow in the dark. Even as an adult, I still think glow in the dark things are super cool and fascinating. The Beata Clasp: This product is a soft foam clasp that has a universal size to attach to any size hospital bedrail, holding medical tubing, lines, and drains. The clasp is specifically designed to prevent any kinks, dislodging, and entanglement by holding the tubies in place within the grooves!